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We're blown away by the support for the Heart Hive!

Full of good intentions for 2020? Want to help us move research into heart disease forward? Register with the Heart Hive today!

We’ve been thrilled and humbled by support for our Crowdfunder campaign, which allowed us to launch in November, and in the short time since then we’ve hit the 250 participant mark. On the back of that success we’re kicking off our first research study – the Heart Hive Cardiomyopathy Study lead by Imperial College London, and over 120 Heart Hive community members have already signed up to take part. We still have space for more participants to join.

For those that don’t know, the Heart Hive is a new way for people with cardiomyopathy and myocarditis to connect with researchers and take part in vital research that will help us understand more about heart muscle disease, develop new treatments and help improve quality of life.

The more people that take part in that research, the more powerful it is. Taking part really makes a difference.

All you need to do to take part in our research study is fill in the questionnaire and consent form which can all be done from your computer or connected device and takes less than 20 mins to complete.

To be eligible, you have a diagnosis of hypertrophic cardiomyopathy (HCM) or dilated cardiomyopathy (DCM), are over 18 years old and live in the UK. Please log in to the portal and take a look at the study information. Once you have completed both online forms, we will send you a saliva collection kit through the post. If you have a different diagnosis you can still register and be the first to know when a new study is added that you are eligible to join

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Heart Hive Update

We've made a decision to temporarily pause saliva collection. The Heart Hive is still open for registration and the Heart Hive Cardiomyopathy Study is still recruiting new participants with DCM and HC