Frequently asked questions
Participants without Heart Disease
Can I register if I dont have cardiomyopathy but a member of my family does?
Yes, anyone with a family history of cardiomyopathy can register witht he Heart Hive
Healthy Volunteer - No
Can I register if i don't have heart disease?
Yes, if you don't have heart disease you can join the Heart Hive as one of our comparison group for our COVID-19 Study
The Heart Hive is primarily a platform for people with cardiomyopathy & those with a family history of cardiomyopathy to take part in research. We expect this will be a one-off opportunity for people without heart disease to take part in the Heart Hive but we may invite you to participate in future studies where a comparison group is needed.
Can I register if I have high blood pressure or diabetes?
Which browsers are compatible with the Heart Hive?
The Heart Hive is not currently supported on Internet Explorer.
I'm having trouble entering my date of birth on the registration page
There is a known bug with the calender in the Heart Hive portal. A fix should be rolled out soon by our developers.
The consent form is not accepting my signature
This may be because you're using a non-compatible internet browser. Please try with a different browser (e.g. Firefox, Chrome, Safari)
Accessing my account
I've forgotten my password, how can I access my account?
You can reset your password here and recieve a link to the email address you registered with.
Please check your junk mail folders.
How can I find out more about the research studies hosted on the Heart Hive?
If you register for the Heart Hive and are eligible for any studies, you will find a section on the landing page called Useful Documents containing full details of any study that might be suitable for you to sign up to.
How do I register for the Heart Hive?
Or you can register if you do not have heart disease and would like to be in our comparison group (check out the Participants without heart disease FAQ section for more details)
Head to our registration page where you can set up an account and provide some basic information about yourself.
I've registered, what next?
I've changed my mind about taking part
If you wish to withdraw from any study, please log in to the Heart Hive and complete the withdraw form.
Can I edit my account details?
Yes, if you've noticed something is wrong in your registration details, log in to your account and click on the purple icon in the top right of the page. Click on profile and edit any section that you need to.